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U.S. Code as of:
01/19/04
Section 1908. Registry
(a) In general
To assist the Center in providing services to individuals who are
deaf-blind, the Center may establish and maintain registries of
such individuals in each of the regional field offices of the
network of the Center.
(b) Voluntary provision of information
No individual who is deaf-blind may be required to provide
information to the Center for any purpose with respect to a
registry established under subsection (a) of this section.
(c) Nondisclosure
The Center (including the network of the Center) may not disclose
information contained in a registry established under subsection
(a) of this section to any individual or organization that is not
affiliated with the Center, unless the individual to whom the
information relates provides specific written authorization for the
Center to disclose the information.
(d) Privacy rights
The requirements of section 552a of title 5 (commonly known as
the "Privacy Act of 1974") shall apply to personally identifiable
information contained in the registries established by the Center
under subsection (a) of this section, in the same manner and to the
same extent as such requirements apply to a record of an agency.
(e) Removal of information
On the request of an individual, the Center shall remove all
information relating to the individual from any registry
established under subsection (a) of this section.
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